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Showing 25 results for Family

Davoud Shoja'ei-Zadeh, Mahshid Nouri, Amir Houshang Mehryar,
Volume 1, Issue 1 (7-2000)
Abstract

Objective: Personality development is a complicated phenomenon. Several external and internal factors such as hereditary background, congenital status, events afterbirth, individual differences, positive and negative promoting behaviors, and other cultural and social factors alone or in combination affect individual personality. Based on the theory of psychological analysis, experiences at childhood, especially interaction with parents have an undeniable effect on individual personality in adulthood. The subject of the present study is to investigate the relationship of family particulars with mental health in high school girls' students in Tehran at third grade in the field of experimental sciences. The present study is a case-study and its purpose is to study theories on dissatisfaction of students at disorganized families and its relationship with anxiety, depression, violence, and obsession.

Materials & Methods: The study subjects were 80 girl students studying at third grade in field of experimental sciences at Tehran high schools. Half of these students were selected as case group and half of them as control group. The subjects were selected with screening method and the SCL-90 test was used to study hypothesis.

Results: The results revealed that there was a significant difference between case and control group. The quality of family relationship had a strong correlation with mental growth of child.  

Conclusion: Based on obtained results, the atmosphere around the control group was happier than the case group. The members of the case group usually did not talk about their problems with father.  


Sahel Hemmati, Abbas Ali Asadi, Zahra Mirsepasi,
Volume 6, Issue 3 (10-2005)
Abstract

Objective: Down syndrome (Trisomy of 21) is the most common chromosomal abnormality which associated with different somatic, psychotic, familial and social problems. This research was done under supervision of the child developmental disturbances group and with support of deputy of research in the University of Welfare and Rehabilitation Sciences with the goal of surveying problems and familial burden of patient with down syndrome.

Materials & Methods: 61 families of the patients registered by the Iranian Society of Down Syndrome were participated (31 families with boys and 30 families with girls patients, patient with the range age of 3-17 years). Expert panel structured questionnaire in 7 domain (each 3 to 6 question) were used. The dates banked and analysis with student spss-pc.

Results: This survey found the most problems in 7 Domains including somatic, psychotic, behavioral, social, learning, supportive and communication problems. Mean priority scores in these domains based on family opinion was near and was 19.72 (SD=2.41). The datas showed most of families need education and knowing about supporting centers. %97 of patients were well accepted by their families, 96% of Families worried about their children after their death. In spite of the disabilities in these patients the families accounted their children as an able person.

Conclusion: The patients with Down Syndrome are accepted in their families and also adjusted with other family members, so the families Support them and expend all the expenditures. The families attitude about these patients are good and not shameful of their. Then need of education, information, social planning about their vocation, and future is a necessitate based on families opinion.


Sima Mohammadkhan-Kermanshahi, Zohreh Vanki, Fazlollah Ahmadi, Parviz Azad-Fallah, Anoushirvan Kazem-Nezhad,
Volume 7, Issue 3 (10-2006)
Abstract

Objective: Giving birth and training to a child with Mental Retardation (MR) can be stressful for mothers. Therefore mothers need role models and adequate preparation to effectively teach the child to function at optimum level within the environment. Nurses are in a strategic position to assume a vital role in a assisting these mothers. With observation, problem solving, and decision making. There is a lack of studies about mothers' experiences of having a child with MR. This study was preformed to investigate mother's experiences of having a child with MR and how explore and describe the experienced mothers with mental retarded child.

Materials & Methods: A phenomenographic approach was used. The study was preformed at an exceptional school in Tehran. Twelve mothers were interviewed using guided interviews.

Results: From 336 thematic sentences, Six categories emerged, the first having three subcategories and the second having twenty subcategories., the third having three, the fourth category having six, the fifth having two, and the sixth having two subcategories. Mother's experiences of having a child with MR, describes informants a variety of feelings, often ambivalent (acceptance and UN acceptance). In such a situation, attention to God and prayer are the most important coping strategies for positive adaptation in mothers' experiences of having a child with MR, but this perception can not effect to accept him alone. They emphasis on educational and psychological needs for better life.

Conclusions: The findings of this study could be used in mothers education to promote understanding of mothers’ experiences and how best to help them. They could also be used in the general media to improve public understanding.


Parvaneh Mohammadkhani, Mohammad Reza Mohammadi, Ebrahim Rezaei-Dokaheh, Hedyeh Azadmehr,
Volume 7, Issue 4 (1-2007)
Abstract

Objective: This study aimed at determing psychopathology and personal and relationship problems in violent husband.

Materials & Methods: In this cross – sectional study 230 male were selected through a multi clustral sampling from four different regions of Tehran. Then they completed Conflict Tactics Scales-2, personal and relationship Profile and Symptoms Check list-90-Revised. Based on their response to Conflict Tactics Scales-2, they were devided in to two groups. Then the psychopathological profile and personal and Relationship problems were compaired.

Results: Psychopathology, personal and relationshoip Profile were drawn. It showed that violence is associated with Psychopathology and excessive personal and relationship problems in violent husband (P&le0/05).

Conclusion: Violent husband in compare with nonviolent husband have more severe psychological symptomathology and more personal and relationship problems.


Bahman Shah-Veysi, Saeed Shoja-Shefti, Farid Fadaei, Behrouz Dolatshahi,
Volume 8, Issue 0 (6-2007)
Abstract

Objective: This study was directed to compare the effect of mental illness stigmatization and its related features on the families of the patients with the schizophrenia and major depressive disorder (MDD) without psychotic features, based on the criterion of DSM-IV-TR conducted on 2005.

Materials & Methods: This research was a cross – sectional and comparative study which performed on 40 family members in each group of above mentioned disorders, who had such medical record at Razi psychiatric center or clinic. The interviews were performed using a self–administered 34 items questionnaire which has shown its validation in previous studies.

Results: The findings indicated that forty - five percent of the schizophrenia group and thirty – two point five percent of the MDD without psychotic features, have been under discrimination and humiliation .The results have also shown that there is only in the schizophrenia group, a significant correlation between the stigma in the family and the duration of patient’s mental disorder and the frequency of their hospitalization (P<0.05). There has also been a significant correlation between the diagnosis of the illness and it’s denying and hiding by the family members (P<0.05).

Conclusion: One half of the families of psychiatric patients experiences the humiliation and discrimination and suffering from the stigmatization which in turn makes them feel uncomfortable and ashamed. The type of the psychiatric disorder play a major role in the stigmatization. The psycho – education of the family along with the general education of the community can have a significant effect on the reduction and hopefully elimination of such stigma.


Ma'soumeh Kouhsali, Seyyed Mahmoud Mirzamani, Parvaneh Mohammadkhani, Masoud Karimlou,
Volume 8, Issue 0 (6-2007)
Abstract

Objective: In this research, comparison of social adjustment in mothers of educable mentally retardedand girls mothers of normal girls has been investigated. The purpose of this study was answer to this questions that whether presence of mentally retarded child has a negative effect on social adjustment of mothers.

Materials & Methods: This research is a case–control and analytical study. 80 mothers (composed of 40 mothers having mentally retarded girls and 40 mothers having normal girls who educated in middle schools) were selected with random sampling. In the present study the weissman & paykel social adjustment scale (1974) was used. This is a semi-structured interview which investigates social adjustment in seven main areas: used work, social and leisure activities, extended family relations, marital relations, parental role, family unit and economic position.

Results: The findings showed that there is a significant difference between social adjustment in mothers of mentally retarded and mothers of normal girls (P<0.01). One way ANOVA and correlation showed that there was not significant difference between the demographic variables (child age, mother age, the length of marriage, the education level of mother, number of children the position of the child in the family) and social adjustment of mothers of mentally retarded girls (P<0.01).

Conclusion: From the results, we can come up with the point, that the social adjustment of mothers of mentally retarded girls is less than that of mothers of normal girls.


Omid Rezaei, Seyyed Mehdi Saberi, Hossein Shahmoradi, Ghaffar Malek-Khosravi,
Volume 8, Issue 0 (6-2007)
Abstract

Objective: Gender Identity Disorder is a rare condition in which individuals experience their gender identity as being incongruous with their phenotype. An important factor related with this disorder is family, which plays a role in etiology and maintenance of the disorder. Finding the relationship between family functioning and Gender Identity Disorder (GID), can be useful for enhancement of the interventions program, to help the patients and evaluation of this relationship is aim of this study.

Materials & Methods: This study was a cross – sectional and case-control research. In this study 37 individuals who have been reffered to Iran Forensic Medicine Organization with Gender Identity Disorder (GID) diagnosed by pschiatric commision filled demographic questionnaire and Family Assessment Device. Matching the control variable (sex, age, and education), 37 available individuals who have no psychiatric problem were selected in control group and filled the device. Data was analized using by T- test for independent groups.

Results: Results showed that "family functioning" (P=0.034) and some functional demensions including "Affective involvement" (P=0.03), "Control of behavior" (P=0.021) and "Affective responsibility" (P=0.009) in Gender Identity Disorder (GID) group in comparison with control group were more unsuficient. But there is no significant diffrence in "Roles" (P=0.15), "Problem Solving" (P=0.16) and "Communication" (P=0.066) between two groups.

Conclusion: In regard to findings of this study, programs through the family intervention can be useful for Gender Identity Disorder (GID) patients. In other hand by viewing these factors planing some programs for prevention and treatment of Gender Identity Disorder (GID) is suggested.


Salar Faramarzi, Mokhtar Malekpour,
Volume 10, Issue 1 (4-2009)
Abstract

Objective: The purpose of this study was to examine the effect of psychological and educational family- based early interventions on motor development of Isfahanian children with Down syndrome under age 5.
Materials & Methods: In this experimental and interventional study, 36 parents who had children with Down syndrome were randomly selected and assigned into two groups by balanced randomized method. Hornby's counseling model and educational plan was implemented on experimental group. To collect data Winders motor developmental checklist and Gesell psycho-motor scale were used. Covariance statistical method was used to analysis the data.
Results: Findings showed that there were significant differences in performance of children with Down syndrome, between experimental group and control group in both gross motor and psycho-motor skills (P<0.001).
Conclusion: The results showed that psychological and educational family- based early interventions had significantly increased motor development in gross motor and psycho-motor skills of children with Down syndrome.


Nikta Hatami-Zadeh, Mohammad Ali Hosseini, Mehdi Rahgozar, Manoochehr Arjmand, Mohammad Saeed Khanjani,
Volume 10, Issue 3 (10-2009)
Abstract

Objective: Since presence of cerebral palsied child affects the life quality of family and specially family caregivers, the aim of this study was to determine the effect of education to caregivers about caring of children with cerebral palsy on quality of life of them.
Materials & Methods: In this interventional and quasi-experimental study, twenty five family caregivers of spastic cerebral palsy children were selected based on inclusion criteria from welfare centers of Babolsar. Instruction courses performed 6-8 sessions and each session takes 30 minutes. The quality of life was assessed using SF36 (short form health survey with 36 question) at the beginning and 3 months after the instruction courses . Paired T test and Wilcoxon nonparametric test were used for data analysis.
Results: The scores of quality of life followed by instruction courses showed that there was meaningful improvement in whole of eight realms , both total realms of physical health and mental health ,as well as total quality of life (P<0.001) .The minimum increase in mean difference found in mental health(11.36±13.59) and the maximum increase found in emotional role (50.66±87.24). The amount of change between pre test and post test in the score of total quality of life was (13.18±13.54).
Conclusion: Findings of this study showed that life quality of family caregivers promoted after instruction about how to do correct care on cerebral palsied children. therefore, the importance of family instruction can be concluded for better life of cerebral palsied child caregivers. It should be noted that the effectiveness of rehabilitation program for cerebral palsied children might have positive effects on life quality of their caregivers.


Ahmad Ali-Pour, Mohammad Nazer, Ahmad Reza Sayyadi ,
Volume 12, Issue 1 (4-2011)
Abstract

Objective: Change in the brain structure with causes such as mental retardation, can alter hemisphere lateralization, especially if it takes place before completing the lateralization development. This research compares two important indices of lateralization including handedness and footedness among mental retarded and normal children and their parents. Four groups were compared to each other in order to showing the influence of mental retardation and family style in lateralization.

Materials & Methods: A cross-sectional study was carried out in second three month of 2008 by selecting 160 children (ranged between 7-13 years old) including 60 mental retarded students (IQ range from 50 to 70) were selected by random sampling and 100 normal children (IQ range 85-115) Were selected by cluster sampling. All participants with their parents completed 10 items of Edinbrough Handedness Inventory and Waterloo Footedness Questionnaire and Raven Progressive Matrices test. First Percent and confidence interval of each preference was presented then preferences of each group with chi-square test were compared.

Results: Amount of right footedness (RF) in fathers of normal children were 87% and their mothers were 86% and normal children were 84%.also amount of (RF) in fathers of mental retard children were71.6% and in their mother were 75% but (RF) in mental retard children were 50%. Amount of right handedness (RH) in fathers of normal children were 91% and in their mothers were 88% and in normal children were 87%. Also amount of (RH) in fathers of mental retard children were 88.3% and in their mother were 85.2% but (RH) in mental retard children were 66.7% . Chi square analysis revealed a significant difference between hand (P=0.013)and foot (P<0.001) preference among mental retarded and normal children, but this difference was not significant among their parents in both population. However Chi square analysis revealed A significant difference between hand (P=0.009) and foot (P=0.018) preference in mental retarded children and their parents.

Conclusion: Handedness and footedness can be changed by mental retardation so lateralization can be varied by MR.


Mohsen Iravani, Nikta Hatami-Zade, Ahmad Fotouhi, Samaneh Hossein-Zadeh,
Volume 12, Issue 3 (10-2011)
Abstract

Objective: This research aimed at comparison effects of a new and current "training program for community rehabilitation workers of Community Based Rehabilitation", in enhancing their knowledge, attitude and skills.

Materials & Methods: In this experimental field trial, a total number of 34 newly engaged local trainers in Lorestan province were divided randomly in two (16 and 18 peoples)interventional groups based on geographical location of their work places

Teaching methods were roll playing, problem solving, and learning by doing in new program and the booklets were revised in terms of fluency and a guideline booklet for trainers were added in this program but the teaching method was reading booklets and demonstration of the skills in current program. Knowledge, Attitude and Skills of trainees assessed just before and after the training course based on the material which were used for the training course. K.A.P. changes of two groups were compared by independent t-test, Mann Whitney, Wilcoxon & Chi square.

Results: Mean knowledge and skills scores increments were remarkably more significant after attending new course than after passing the current course (P<0.001) and more rehabilitation workers who attending new course use practical guides in addition to verbal instructions to train disabled people and their families (P=0.028). There were no significant differences in attitude changes among the two groups.

Conclusion: As trainees learned more by means of the new training course and the two courses were not so different in the resource allocation, substituting the new method to the current one should get consideration.


Hamideh Soleymani, Mohammad Kamali,
Volume 13, Issue 1 (4-2012)
Abstract

Objective: The aim of the present study was to investigate the features of the Family-Focused Intervention Scale (FFIS) for mothers of children with special needs.

Materials & Methods: Descriptive-survey and validation research methods’ were applied for the survey. Participants were drawn from a sample of 200 mothers of/with children with special needs in were selected from the special schools by selected based on the in-reach sampling. The Family-Focused Intervention Scale (FFIS) were used as measurements instrument. To assess the results of the study, the statistical package for social sciences (SPSS) version 16 was used for computing correlations, reliability coefficients (Cronbach’s &alpha), test-retest reliability, and item-total correlation and factor analysis.

Results: Test of the internal consistency of the Family-Focused Intervention Scale (FFIS) revealed that all 40 items were highly correlated with the total score. The Cronbach’s alpha for the scale was 0. 83. A re-administration of the measure 1 month later yielded high correlation. Item-total correlation was in acceptable range for items (P<0. 001). The Pearson’s correlation coefficient between the subscales and total score were (r=0. 11-0. 64) respectively. Factor analysis extracted five factors including System engagement, Child information, Family instructional activities, Personal-Family assistance and Resource assistance, with a value of greater than one exhibited 55. 82% of the total variance.

Conclusion: The results of this study indicate that measuring the Persian version of the FFIS appeared to be credible with high stability for assessing intervention programs. The findings of the present research give support to the significant value of this questionnaire for future studies.


Moloud Radfar, Fazlollah Ahmadi, Masoud Fallahi-Khoshknab,
Volume 14, Issue 1 (4-2013)
Abstract

Objective: Depression is the most common mood disorder. Today, family has main responsibility in caring of psychiatric patients. For ensuring best care for depressed patients, families require social and health systems supports. The aim of this study was to explain the experiences of the families about function of these supportive sources.

Materials & Methods: This is a qualitative research carried out using conventional content analysis method. Twenty-four family members of the patients suffering from depression and referred to Razi psychiatric clinic in Tehran were selected using purposeful sampling. Unstructured and in-depth interviews were applied to collect data. The interviews were transcribed and constant comparison analysis was applied. MaxQDA 2007 software was used to manage the data.

Results: According to the family experiences, social and health support resources are not comprehensive and efficient. The performances of the supporting sources have been extracted in four themes. These themes include: “incorrect viewpoints of the society”, “inadequate support”, "ineffective health system”, “economic–cognitive deficiency of the families” that they were the main themes.

Conclusion: During the process of depressed patient care, families find themselves alone. They need to access to have easy comprehensive support systems. In addition, health team must implement the follow up programs regularly and dynamically.


Somayeh Mohammadi, Mostafa Roshanzadeh,
Volume 17, Issue 1 (4-2016)
Abstract

Objective Family member caregivers of patients with spinal cord injuries experience varying degrees of burden because of the long process in the care of their patients. These conditions have different negative consequences for the family caregivers. One of the most important protective factors against the suffering of the caregivers is their knowledge about care giving process. Therefore, the aim of the present study was to evaluate the effect of educational intervention based on Orem self-care model on family caregivers' burden of patients with spinal cord injuries.
Materials & Methods This was a quasi-experimental study with pretest and posttest design and control group. It was conducted on patients with spinal cord injuries at South Khorasan Province. Research units purposefully selected and then were randomly allocated to experimental and control groups. Experimental group received educational intervention based on Orem self-care model for patients with spinal cord injuries consisted of eight 40-minute teaching sessions at the center. To measure the burden of caregivers, 22-item Zarit questionnaire was used with content validity index of 80% and Cronbach α of 0.79. The questionnaire was completed before and after the intervention in experimental and control groups. The results were analyzed by SPSS version 16 using descriptive (frequency, mean and standard deviation) and analytical (t-test, ANOVA and Pearson correlation coefficient) statistics.
Results Mean of burden in caregivers was not significantly different between the 2 groups before The intervention. But, we observed significant differences between the 2 groups after the intervention. The difference between mean of burden before (3.2±0.33) and after (3.11±0.66) the intervention was significant (P<0.05) which shows the positive impact of education. The results obtained with regard to the relationship between mean burden of caregivers and demographic variables indicate that there is a significant relationship between the burden of caregivers and their income, before and after intervention in 2 groups (P<0.05). Furthermore, burden score shows a significant positive association with the duration of caring the damaged patient. The longer the duration of caring, the higher would be the burden score (P<0.05, r=0.3). The burden score relates also with increasing age, both positively and significantly (P<0.05, r=0.3). There was no significant correlation between other variables and burden score (P>0.05).
Conclusion The results of this study suggest that education of family caregivers of patients with spinal cord injuries based on Orem self-care model can reduce their experienced burden resulted from chronic and long term caregiving involvement. Moreover, the financial situation and occupation of caregivers could be a positive relational factor in their burden. Therefore, we suggest that the family of caregivers  be under support and supervision of social and therapeutic supportive organizations. Also, with regard to long-term care of these patients, some measures like caring the patient at home with support and backing of spinal-cord injury centers to reduce the pressure on the family of caregivers are recommended.


Maryam Ramshini, Saeid Hasanzadeh, Gholam Ali Afroz, Hadi Hashemi Razini,
Volume 19, Issue 2 (7-2018)
Abstract

Objective The treatment of autism, a long-term developmental neurological disorder, is controversial. Because of the increasing trend and the lack of a known cause in this area, the treatment is complicated; obscure development of the disorder is a fundamental issue for the parents of these children. Due to the nature of the disorder and involvement of long durations of treatment, various therapeutic methods are used. In addition to the present treatments, a cost-effective and effective treatment is nature therapy (Eco therapy). Therefore, we decided to study the effectiveness of family-centered nature therapy on children with autism spectrum disorder.
Materials & Methods A quasi-experimental (pre-test/post-test) study was conducted involving children with autism spectrum disorder (3-7 years old) who were referred to Tehran’s rehabilitation and therapeutic centers. Fourteen children with autism spectrum disorder were selected by an available sampling method and randomly assigned to experimental and control groups. In each group, 7 children (6 boys and 1 girl) were placed. Ten therapeutic sessions were conducted in 3 months in the summer of 2017; each session was held for 3 hours (9 am to 12 pm) in the Nature School of Savan (located in Chitgar Forest Park) with the obligatory presence of parents (parents or at least one of them). To collect data, the Autism Treatment Evaluation Checklist (ATEC) and the Nature Therapy programs (based on the theoretical framework and relevant research findings) were used. The Autism Treatment Evaluation Checklist (ATEC) consisting of four parts, speech / language / communication, socialization, sensory / cognitive awareness, and health / physical / behavior were scrutinized three times, i.e., before the start of the session, 10 days after the last session of education and three months after the last training session. Each family was followed up by the other families. The variables studied in this study were, family-centered nature therapy (independent variable) and autism spectrum disorder syndrome (dependent variable). Data were analyzed using descriptive statistical methods (mean, standard deviation, minimum and maximum scores) and inferential methods (Leven test to assess the assumption of the equation of error variances, Kolmogorov-Smirnov test to examine the normal distribution of covariance analysis and to investigate the effect of test conditions on the dependent variable of the groups).
Results The results showed that the average score of the post-test for Autism Treatment increased in the experimental group (172.3±5.11) compared with the post-test for control (1.151±10.24), which was statistically significant. This showed that the nature therapy program brought an improvement in children with autism spectrum disorder. Also, the average follow-up scores (after 3 months) of the experimental group (173.91±12.02) indicated the efficacy of treatment. The results of covariance analysis indicated that the calculated F value (F=21.91) was highly significant (P<0.001), indicating the effectiveness of the experimental conditions on the dependent variable (improvement in syndrome).
Conclusion The findings of this study showed that family-centered nature therapy improved the syndrome in children with autism spectrum disorder. These children have shown remarkable progress, especially in the field of social and communication skills. Therefore, it is suggested that this type of treatment has positive, simple and accessible effects and can be used as a complementary method along with other treatments for these children.

Hooshang Mirzaie, Ehsan Jamshidian, Seyyed Ali Hosseini,
Volume 19, Issue 3 (10-2018)
Abstract

Objective Routines are a set of daily and regular activities that play an important role in the development of the child and the family. These activities include building the structure for daily life, developing social skills, academic skills, speech skills, facilitating family relationships, and creating a sense of belonging among family members. This study examines the routines of families of children with autism.
Materials & Methods Routines are a set of daily and regular activities that play an important role in the development of the child and the family. These activities include building the structure for daily life, developing social skills, academic skills, speech skills, facilitating family relationships, and creating a sense of belonging among family members. This study examines the routines of families of children with autism.
Results Routines are related to family health. However, following routines in the families of children with autism are difficult due to factors associated with the child such as lack of flexibility, problematic behaviors and sensory-processing problems; factors associated with care givers, such as parents’ anxiety or marital problems; and environmental factors such as the lack of access to autism healthcare services in less populated and remote areas. Thus, parents of children with autism face the challenge of creating and maintaining the routines. A child with autism usually takes the center of family structure and activities. This condition will eventually end in controlling the daily routines of families. In other words, a significant portion of the daily life of the family is linked to the needs of the child with autism. Some routines such as eating and sleeping have been specifically addressed as challenging routines. The structure of routines takes shape around the needs of the child, rather than the whole family, and in some cases, the needs of other family members are ignored. The presence of a child with autism in the family negatively affects the development of meaningful interactions. The pervasive nature of autism leads to inflexible, child-focused routines and limited emotional and social experiences during everyday life activities in their families. Despite the challenges that families of autistic children may have to participate in routines, these families try to engage in challenging routines, which have meaning and importance for them, to learn their child’s endurance. They do not give a chance to the child with autism to decide for their family and collaborate with family members.
Conclusion Despite the important role of routines in the growth and health of the child and the family, it seems that the disabling nature of autism with its many complications, which overshadows other family planning affect the quantity and quality of family participation in activities and developing meaningful routines. Although the development of a child with autism has a burden on the family, inability to create interactions, understanding the child, and communicating among family members makes the situation in the family more problematic. As a result, the families of children with autism are unable to create and maintain effective routines for the optimal participation of family members that eventually leads to the loss of family integrity and solidarity.

Azade Riyahi, Mehdi Rassafiani, Fatemeh Rafiei,
Volume 20, Issue 1 (4-2019)
Abstract

Objective Family is the center and core of the patient’s care, so the most effective therapeutic programs are those that emphasize the role of the family in treatment. The purpose of this study was to evaluate the delivery of family-centered services by service providers for families and children in Iran based on the Persian version of the Measure of Processes of Care for Service Providers (MPOC-SP) Questionnaire.
Materials & Methods In this study, 150 service providers participated including doctors, nurses, midwives, rehabilitation therapists, as well as graduates in public health. The Persian version of the MPOC-SP questionnaire was used to collect the study information. The collected data were then analyzed in SPSS 22.
Results The results showed no significant difference between men and women providing the service regarding the components of the questionnaire for measuring the process of care. The mean of components in "providing general information" in the medical group was statistically significant and higher compared to the basic science group. The average score of "showing interpersonal sensitivity", "providing general information", and mean score of total services in different service centers were statistically significant. The average score of the "showing interpersonal sensitivity", "providing of general information" as well as the mean score of the whole questionnaire of the process of care in the private centers was statistically significant and higher than the governmental centers. The average components of "showing interpersonal sensitivity", "treating people respectfully", "providing of general information", as well as the average score of the total questionnaire of the process of care in different age groups of service recipients were statistically significant. The average of the same components in different service providers also had a statistically significant difference.
Conclusion providers' responses showed that health and rehabilitation centers provided good services in terms of respectful behavior, but providing general information and showing interpersonal sensitivity were relatively weak areas. The average scores of these components as well as the average total score of the questionnaire were the highest in rehabilitation fields and then ranked by medical and other therapy
personnel respectively.

Ehsan Jamshidian, Houshang Mirzaei, Seyed Ali Hosseini, Samaneh Hosseinzadeh, Maryam Farzad,
Volume 20, Issue 2 (7-2019)
Abstract

Objective Autism spectrum disorders are among the most prevalent developmental disorders. Diagnostic criteria for these disorders consist of the two general categories of symptoms, including deficiencies in communication and social interactions, and limited, repetitive and stereotypic patterns in behavior, interests, and activities. Routines are well-established  and the regular patterns of occupations and activities that provide structure and stability for everyday life and add meaning to it can affect health. The disabling nature of autism and its numerous associated problems unable families to develop effective and meaningful routines; consequently, the integrity and solidarity of family are lost and family is disturbed. A proper tool is required to evaluate everyday routine in the families of children with autism. The present study investigated the validity and reliability of the Family Time and Routines Index (FTRI) in the Iranian families of children with autism.
Materials & Methods This was a non-experimental methodological study. The statistical population of the study consisted of all children with autism in Tehran City, Iran. Among them, 100 parents of children with autism referring to autism centers and private clinics in Tehran were selected by the convenience sampling method; they were entered into the study, according to the inclusion criteria. Inclusion criteria were the diagnosis of autism by a child psychiatrist, based on the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-V), the age of 3-11 years, and the absence of blindness, deafness, epilepsy, and other disabilities in the child. Moreover, the subjects with no desire to cooperate or uncompleted the questionnaires were excluded from the study. The required data were collected using demographic information questionnaire and FTRI completed by parents. After obtaining the permission of the designer of the questionnaire for translation and the investigation of its psychometric properties, the questionnaire was translated according to the International Quality of Life Assessment (IQOLA) project. The face validity and content validity of the questionnaire were evaluated using experts and parents’ opinions; then, a preliminary test was conducted in which the questionnaire was completed by 10 parents of children with autism to determine the appropriate time to complete the questionnaire. Consequently, 100 parents of children with autism completed the demographic information questionnaire and FTRI. Furthermore, to determine the test-retest reliability, after 2 weeks, 33 parents of children with autism re-completed the questionnaire. To examine the face validity, item impact score was calculated. To assess the content validity, Content Validity Ratio (CVR) and Content Validity Index (CVI) was used. Internal Consistency Coefficient (ICC) was used for assessing the test-retest reliability of the scale. Moreover, the internal consistency of the whole questionnaire and its subscales was assessed by Cronbach's alpha coefficient.
Results Item impact score for all items of the questionnaire was over 1.5. The CVR for each item of the questionnaire was between 0.8 and 1 and for the whole questionnaire was equal to 0.87. The CVI for the items of the questionnaire was between 0.83 and 1 and for the whole questionnaire was equal to 0.97. Additionally, the intraclass correlation coefficient for the total score was equal to 0.96 and Cronbach's alpha coefficient was calculated as 0.88. Moreover, the lowest Cronbach's alpha coefficient related to the subscale of child routines (0.70) and the highest related to the subscale relative's connection routines (0.86).
Conclusion The obtained results indicated that FTRI has acceptable validity and reliability in the Iranian samples and can be a useful research and clinical tool for assessing the family routines.

Farshad Fathi, Ali Khezri, Mohammad Saeed Khanjani, Samaneh Hosseinzadeh, Kianoush Abdi,
Volume 20, Issue 3 (9-2019)
Abstract

Objective: Responsiveness is a process that all organizations, such as hospitals and rehabilitation centers, need to implement it in order to legitimize their activities; and on the other hand, the recipients of rehabilitation services as a citizen of the community have a special place. Therefore, the main purpose of this study was to determine and compare the response status of rehabilitation service providers from the perspective of people with disabilities (PWD) and their families in Tehran in 2016.
Materials & Methods: The study is descriptive-analytical and cross-sectional. The statistical population of the study consisted of all people with disabilities and their families who received rehabilitation services (Red Crescent, Wellbeing, Private Sector) in 2017. Samples were collected from rehabilitation centers of 5 districts of Tehran, using available sampling. The questionnaire was distributed based on the Response Questionnaire (World Health Organization, 2000) and 357 samples were collected. Adults with physical and motor disabilities and families with children with physical disabilities were included in the study, as well as those with mental disabilities and those who did not wish to participate in the study, as well as incomplete and unread questionnaires. The questionnaire has eight domains and included 25 questions. The questionnaire was distributed among 11 rehabilitation specialists with CVI=0.91 and the reliability of the questionnaire was confirmed by 30 questionnaires in four centers in two weeks with a correlation coefficient of 0.83 and Cronbach's alpha of 0.77. Data were analyzed through descriptive statistics (mean and standard deviation) and inferential statistics (Mann-Whitney and Kruskal-Wallis) by using SPSS V. 22.
Results: The results showed that the age of the majority of patients (49.6%) was in the group of 30-39 years. Depending on the type of center, the mean age included 49.5% in private centers, 49.5% in the welfare centers, and 50% in Red Crescent. The highest responsiveness was related to the dimensions of the right to choose and environmental quality (2.6 and 2.41 out of 5, respectively) in private centers, environmental quality (2.1 out of 5) in welfare centers, and then, right to choose had the highest score. The lowest accountability was reported for dignity (2.18 out of 5). The mean scores of social support dimensions in the three types of center were statistically different (P=0.001), as well as the mean scores of immediate attention (P=0.002), participation in decision-making (P=0.009), confidentiality (P=0.010), and total responsiveness (P=0.04) there was a statistically significant difference between the two groups of referral type and mean scores of immediate attention dimensions in the two sex groups (P=0.022). However, the mean scores of total responsiveness dimensions in marital status (P=0.446) and type of insurance (P=0.535) were not statistically significant.
Conclusion: The findings of this study displayed that responsibility as a criterion of quality of rehabilitation services, in fact, provides a clear picture of the clients’ performance. Responsibility of welfare centers was better than private and Red Crescent Centers. In this study, rehabilitation centers had the lowest performance in areas of transparent communication, dignity, and social support which may result in lower dignity which may indicate less attention to the dignity of the recipient of the service and the deficiency of insufficient insurance coverage to support rehabilitation services. While these dimensions of responsiveness are important for services recipients. Therefore, it is necessary to respond to the rehabilitation system in these areas (transparent communication, dignity and social protection). Also, it is recommended further studies in the area of responsiveness of rehabilitation system.

Zahra Pashazadeh Azari, Seyed Ali Hosseini, Mehdi Rassafiani, Sayed Ali Samadi, Winnie Dunn, Samaneh Hosseinzadeh,
Volume 21, Issue 1 (3-2020)
Abstract

Objectives: The current study investigated the potential acceptability and effectiveness of Contextual Intervention adapted for Autism Spectrum Disorders (CI-ASD) in developing children’s participation and mothers’ parenting self efficacy. Contextual Intervention adapted for Autism Spectrum Disorders (CI-ASD) involving contextually reflective occupational therapy combines 3 elements: parent coaching, child’s sensory processing patterns, and social support of parents. Intervention sessions comprised group parents training and (individualized) coaching sessions, which reflective questions and discussions with mothers support them in identifying best plans to achieve their therapeutic goals.
Method: In this pilot research, we employed a single subject, A-B-A interrupted time series design across 3 participants (3 mothers of children with the diagnosis of Autism Spectrum Disorders) reffered to Navid-e-asr rehabilitation center in Tehran, in spring of 2017. The participants were selected among families who have children with diagnosis of Autism Spectrum Disorders, ages 3-10 years and had at least one sensory pattern outside typical range based on the Short Sensory Profile II. Recruitment was based upon parent reports, Short Sensory Profile II data, demographic questionnaires and informed consents. The mothers’ education participated in this research were diploma or above diploma, and they could understand and speak Persian very well.
We conducted the study for eighteen weeks in 3 phases. During baseline period or phase 1, the participants received treatments as usual (TAU) for 4 weeks. During intervention period or phase 2, the participants received Contextual Intervention adapted for Autism Spectrum Disorders (CI-ASD) for 10 weeks, 1 week group parents mothers training (two sessions) and 9 weeks individualized coaching sessions (1 session per week), in addition to treatments as usual (TAU). During phase 3 or follow up, participants received only treatment as usual (TAU) for 4 weeks. The intervention therapist and coach was an occupational therapist, with 20 yrs. of clinical experience in pediatric rehabilitation implemented CI-ASD sessions during the study. In this pilot research, we administered outcome measures four times: prior to the study before phase 1 (pre- intervention1), after phase 1 (pre- intervention2), after phase 2 (post- intervention) and, after phase 3 (follow- up). We measured child participation by Canadian Occupational Performance Measure (COPM) and Goal Attainment Scaling (GAS), and parental self efficacy by Parent Self Efficacy Measure (PSEM). We conducted semi-structured interviews after completing the intervention period to explore acceptability of treatment and participants’ experiences of Contextual Intervention adapted for Autism Spectrum Disorders (CI-ASD). We used visual inspection of graphed data to identify variations between phases.
Results: Two of three participants )two mothers( completed the program and described growth in children occupational performance (COPM1)  [13, 14, 22, 26] and [12, 12, 23, 29], satisfaction of occupational performance (COPM2) [13, 17, 22, 25] and [7, 7, 23, 29], goal attainment (GAS)  [-6, -6, +2, +6] and [-6, -6, +2, +6], and parental self efficacy (PSEM) [50, 53, 57, 57] and [44, 43, 49, 55]. Two participants (mothers) found Contextual Intervention adapted for Autism Spectrum Disorders (CI-ASD) highly acceptable. Data showed development in occupational performance (COPM1), satisfaction of occupational performance (COPM2), goal attainment (GAS) and parental self efficacy (PSEM) continued after 4 weeks follow up. One of three participant (one mother) had difficulty accepting Contextual Intervention adapted for Autism Spectrum Disorders (CI-ASD) and left the study after 3 coaching sessions.
Conclusion: On the report of two participants, Contextual Intervention adapted for Autism Spectrum Disorders (CI-ASD) was acceptable to deliver and may show promise as an intervention for children with the diagnosis of Autism Spectrum Disorders and their families. Further research is needed to determine the effectiveness of Contextual Intervention adapted for Autism Spectrum Disorders (CI-ASD). Since one family did not accept the Contextual Intervention adapted for Autism Spectrum Disorders (CI-ASD), it would be useful to identify characteristics of families who may benefit most from this intervention.


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